Hands down, one of the best resources for lupus out there right now, is the Lupus Foundation of America‘s magazine, Lupus Now. Even if you haven’t subscribed to receive the magazine, the website has sample articles in their Archive section.
Dovetailing off my Cultivate Your Weirdness trilogy, I found a similar article from their Summer 2009 issue.
Lupus Now: In the Mix: Designing a social life around the limits of lupus
Go and check it out now!