“I just want to be normal.” “Why can’t I catch a break?” “Why doesn’t anyone understand what I’m going through?” “Why won’t my doctors listen?” “When will I find a treatment that helps?” At some point, most lupus patients wind up asking themselves these kinds of questions. Lupus is a fundamentally frustrating illness. From multiple … Continue reading »
Author Archives: Ro
Lupus News Roundup May 2013
Here are some of more interesting news items on the web regarding lupus: *Hospital Prices No Longer a Secret – Huffington Post *See how your hospital stacked up by downloading the CMS’ 2011 report here Hydroxychloroquine under scrutiny for cardiac neonatal lupus prevention – OBGYN News.com 7 Apps for Lupies – Laptop Mag Lupus Initiative … Continue reading »
Lupus New Roundup April/May 2013
Prednisone doses over 10mg can contribute to cardiac problems in lupus patients – FamilyPracticeNews.com Taking Vitamin D? It might not be enough. – Healio.com New research says lupus drugs during pregnancy are okay – MedPageToday.com And finally….May is Lupus Awareness Month! Visit the LFA’s website for activities in your area and free web icons and … Continue reading »
Sanity in Numbers? – Support Groups for Lupies
When I was first diagnosed with lupus, my mother pressured me to join a support group. To her, it made perfect sense; since she couldn’t understand what was happening to me, I should seek out others who were going through the same thing. From them, I could avoid feeling alone, learn about lupus and better … Continue reading »
Lupus News Roundup 3/2013
New Treatment guidelines for lupus published in Europe may help spur creation of more meds – RAPS.org Kidney disease in lupus not the same as lupus nephritis – Arthritis Research & Therapy Are nanogels the future of lupus treatment? – R&D Magazine Takeda Pharmaceutical Company (TKPYY) and Resolve Therapeutics throw their hats into the lupus-treatment … Continue reading »
Awesome People with Lupus: Ania Bula
One of the biggest hurdles to the treatment of chronic illnesses such as lupus, is the fact that the physical symptoms for lupus can also be the symptoms for arthritis, MS, fibromyalgia or a host of other diseases. So while today’s Awesome Person is not a lupus patient, she’s a sister in dealing with chronic ickyness. … Continue reading »
I need more Awesome People with Lupus!
If you are doing something inspiring, fun, motivating and just plain awesome despite having lupus – then I want to interview you! Past Awesome People With Lupus: Geoff Thomas – Photographer, Writer and Publisher FREEK-A-RELLA – Roller derby gal extraordinaire Continue reading »
Getting Back Up…Again (and Again and Again and Again)
Lupus limits us enough as it is. But I don’t think it’s our biggest enemy.
Convention is the enemy. The little voice that tells you to stop dreaming, and start settling because you’re a broken human being and shouldn’t expect much. The voice that tells you to be afraid of everything. I know I’m sick of hearing it – what about you? Continue reading »
Lupus Quick Tip: Are You a Summer Lupie or a Winter Lupie?
Similar to other auto-immune/ inflammatory/ chronic illnesses, weather can trigger or reduce certain symptoms. For example, extremes in humidity can make joints more achy and aggravate inflammation (I know it wreaks havoc on my breathing and joints). While it’s no fun to feel like a slave to your local weather service, seasonal weather patterns can … Continue reading »
Lupus News Roundup 1/21/13 – and an announcement!
Even though I’m hunkering down to avoid the big, scary mutant flu that has the Big Apple in its germy grip, I still found some great news items. First, the good news: Study in Spain shows good results for new cutaneous lupus patients Study in China announces good findings for new alternative to cytoxan treatments … Continue reading »
