Lupus limits us enough as it is. But I don’t think it’s our biggest enemy.
Convention is the enemy. The little voice that tells you to stop dreaming, and start settling because you’re a broken human being and shouldn’t expect much. The voice that tells you to be afraid of everything. I know I’m sick of hearing it – what about you? Continue reading »
New Year, Old Cycle I’m not going to speculate whether it’s part of American society or just plain human nature, but in general, people like to advance and achieve. Whether it’s looking for a better bargain on shoes, a better apartment (I’d sure love one!), a better paycheck or a better haircut, the bright and … Continue reading »
How has lupus turned your life upside down? If you tune into Facebook, the SLE Lupus Foundation asked this exact question today. In less than an hour there were more than 60 comments covering a range of stories and experiences. There was a lot of overlap – many people has similar feelings of frustration, isolation, … Continue reading »
I’m something of a travel-bug. I like to go on trips when I can. Usually I prefer short, semi-roughing-it excursions that are not too far away or a local stay-cation type of trip (which, in New York City, can be great fun), but sometimes you get the chance to go on a once-in-a-lifetime trip … Continue reading »
Do you routinely DVR every episode of shows like The Doctors, The Chew, or Dr. Oz? When a new study about food pops up on the news, do you change your diet to follow? Are you a walking encyclopedia on various eating styles such as macrobiotic, paleo or veganism? Have you tried every trick on … Continue reading »
I’ll come right out and say it; I love food. I love experimenting with flavors (perhaps a little too enthusiastically for my mother’s taste) and techniques. Eating is fun; every meal can be as familiar and comforting or new and unusual as I choose. And, living in New York City, I have an entire globe’s … Continue reading »
I hear this a lot from both other lupus patients and non-lupus people who just want throw advice my way. They frown upon taking a day off, limiting activities, taking medications, or anything else that is less than having a “normal” life, because this implies, in some way, that you’ve surrendered to your illness and are letting it rule you.
In my humble opinion, that’s bullshit. Continue reading »
I have a cousin who’s a bit of a kook (which is why she’s my favorite of course). When the book The Secret came out, she was one of the first on line to get a copy. I’m not writing to talk about the actual book, but more about the debate it spawned about positive … Continue reading »
Whew! It’s been a busy couple of weeks for your humble internet blogger. Along with the usual pre-holiday madness, I also had an article published on She’s Self-Employed. If you currently are, or are thinking about adding CEO to your name, it’s a must-visit site. Hopefully, I’ll have some more pieces coming out soon as … Continue reading »
People would chide me for not being considerate enough (or fearful enough) of my health or telling me outright the big old “NO!”. This wasn’t just limited to physical activities, but also to any situation that might put “stress” on me – even becoming an excuse to deliberately keep information from me that might be upsetting (such as my mother needing shoulder surgery). And, deep down, I would wonder if they were right. Maybe I should just stay home, twiddle my thumbs and stare at the ceiling for the rest of my life. Safe. Protected. Bored out of my skull. Continue reading »