Lupus limits us enough as it is. But I don’t think it’s our biggest enemy.
Convention is the enemy. The little voice that tells you to stop dreaming, and start settling because you’re a broken human being and shouldn’t expect much. The voice that tells you to be afraid of everything. I know I’m sick of hearing it – what about you? Continue reading »
New Year, Old Cycle I’m not going to speculate whether it’s part of American society or just plain human nature, but in general, people like to advance and achieve. Whether it’s looking for a better bargain on shoes, a better apartment (I’d sure love one!), a better paycheck or a better haircut, the bright and … Continue reading »
How has lupus turned your life upside down? If you tune into Facebook, the SLE Lupus Foundation asked this exact question today. In less than an hour there were more than 60 comments covering a range of stories and experiences. There was a lot of overlap – many people has similar feelings of frustration, isolation, … Continue reading »
Do you routinely DVR every episode of shows like The Doctors, The Chew, or Dr. Oz? When a new study about food pops up on the news, do you change your diet to follow? Are you a walking encyclopedia on various eating styles such as macrobiotic, paleo or veganism? Have you tried every trick on … Continue reading »
Even though the television says it’s only 85 degrees outside, inside feels like a swampy 96. Such conditions are perfect, so my mother thinks, for scrubbing down the fridge. Even splitting the task and using a mop (those sponge mops are great for this), within a minute I’m dripping sweat and my chest seizes up, … Continue reading »
Break out the time machine and post below what you would tell your past self about living with lupus Continue reading »
Setbacks can be a sharp wake-up call if you’ve been slacking or a rally to action if you know you can work harder. So while the sting is still felt, use the time to re-evaluate your game plan, check your resources (or look for new ones) and consider new directions. Continue reading »
I hear this a lot from both other lupus patients and non-lupus people who just want throw advice my way. They frown upon taking a day off, limiting activities, taking medications, or anything else that is less than having a “normal” life, because this implies, in some way, that you’ve surrendered to your illness and are letting it rule you.
In my humble opinion, that’s bullshit. Continue reading »
One of my biggest lupus peeves is all the prep time and second-guessing that goes into every single, little activity. When your energy, pain levels and just about everything else fluctuates daily, you have to plan for every possible hitch, delay and problem. I’ve found that this is also one of the toughest aspects of … Continue reading »
The SLE Lupus Foundation is giving a free webinar on April 11th on the topic of Coping With Chronic Illness. Let’s face it; it’s hard to keep a sunny, cheerful disposition when you have a chronic illness. Even the most resistant person on the planet is going to have really bad days – but when … Continue reading »