Prednisone doses over 10mg can contribute to cardiac problems in lupus patients – FamilyPracticeNews.com Taking Vitamin D? It might not be enough. – Healio.com New research says lupus drugs during pregnancy are okay – MedPageToday.com And finally….May is Lupus Awareness Month! Visit the LFA’s website for activities in your area and free web icons and … Continue reading »
Tag Archives: support
Getting Back Up…Again (and Again and Again and Again)
Lupus limits us enough as it is. But I don’t think it’s our biggest enemy.
Convention is the enemy. The little voice that tells you to stop dreaming, and start settling because you’re a broken human being and shouldn’t expect much. The voice that tells you to be afraid of everything. I know I’m sick of hearing it – what about you? Continue reading »
Do New Year Resolutions Stress You Out? Try This Instead.
New Year, Old Cycle I’m not going to speculate whether it’s part of American society or just plain human nature, but in general, people like to advance and achieve. Whether it’s looking for a better bargain on shoes, a better apartment (I’d sure love one!), a better paycheck or a better haircut, the bright and … Continue reading »
Your Lupus Holiday Survival Guide
Despite loving how New York City looks this time of year – the gorgeous store window displays, lights twinkling on the bare tree branches and building fronts – I really don’t look forward to the holidays. Tourists pour in, making the streets even more crowded than usual and you end up needing a mace … Continue reading »
Are Your Glasses Pitch Black or Rose-Tinted?
How has lupus turned your life upside down? If you tune into Facebook, the SLE Lupus Foundation asked this exact question today. In less than an hour there were more than 60 comments covering a range of stories and experiences. There was a lot of overlap – many people has similar feelings of frustration, isolation, … Continue reading »
The Value of Lupus Education and News Roundup
Every year (as much as I’m able) my mother and I go to a couple of the SLE Lupus Foundation’s hospital tour lectures. While there are tons of great reasons for actual patients to go (speak one-on-one with specialists, get resources, learn about clinical trials and new medications and be better informed), I think my … Continue reading »
Lupus and Work: What are your options?
From telecommuting to work share options, a traditional 9-to-5 position no longer has to be the only way to support yourself. Every style of employment has its benefits and challenges. Finding (or creating) a career that not only pays the bills, but also fits your lifestyle is as important an element to your health, as taking your medications and eating well. Continue reading »
Just Diagnosed? What I Wish I Was Told…
Break out the time machine and post below what you would tell your past self about living with lupus Continue reading »
A quick “Thank You!” to all my subscribers
I just wanted to take a quick minute to give huge “thanks!” to everyone who’s subscribed to Life Despite Lupus. It’s a huge motivation to know that there are people who like my writing and are (hopefully!) finding some support and motivation of their own from my blog. I also want to invite your feedback … Continue reading »
Dealing with Setbacks (hint: punching the walls doesn’t work)
Setbacks can be a sharp wake-up call if you’ve been slacking or a rally to action if you know you can work harder. So while the sting is still felt, use the time to re-evaluate your game plan, check your resources (or look for new ones) and consider new directions. Continue reading »
