30 Things You Might Not Know

This little meme comes from the Invisible Illness Awareness Week website.

1. The illness I live with is: Systemic Lupus
2. I was diagnosed with it in the year: 2000
3. But I had symptoms since: …um age 7? I’ve lost track.
4. The biggest adjustment I’ve had to make is: Learning to let my friends and family help me when I need it.
5. Most people assume: That I’m just fat and lazy.
6. The hardest part about mornings are: When my spine hurts too much to get up or when my hip joints are so stiff I have to literally roll out of bed.
7. My favorite medical TV show is: I’m more a Sci-Fi chick.
8. A gadget I couldn’t live without is: Heating pads and back massagers.
9. The hardest part about nights are: Deciding between sweating to death in my bed or opening the window a crack and waking up with a fever (seriously, it’s happened so many times, I don’t even bother calling my doctor anymore).
10. Each day I take 4 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: tried acupuncture, do yoga, reiki, herbs, teas, meditation, been anointed, prayed over and just about anything else you can think of.
12. If I had to choose between an invisible illness or visible I would choose: Visible. Then people won’t give me dirty looks for not giving up my seat on the bus.
13. Regarding working and career: I’m a freelance-everything.
14. People would be surprised to know: I’m actually more busy after losing my job – I advocate and advise family members about doctors, treatments and medical legal issues, run my blog, freelance, care for my mother, volunteer and teach others with chronic illness better self-care.
15. The hardest thing to accept about my new reality has been: That I might actually need looking after. 😛
16. Something I never thought I could do with my illness that I did was: Visit Pompeii (2009!).
17. The commercials about my illness: What commercials?
18. Something I really miss doing since I was diagnosed is: Dancing and not feeling tired all the time.
19. It was really hard to have to give up: A chunk of my independence.
20. A new hobby I have taken up since my diagnosis is: Yoga.
21. If I could have one day of feeling normal again I would: No idea.
22. My illness has taught me: I can do anything – it just takes me longer.
23. Want to know a secret? One thing people say that gets under my skin is: “Well, doing this will give you more energy!” (It’s usually a ploy to get me to do something for them.)
24. But I love it when people: Ask questions instead of hurl assumptions.
25. My favorite motto, scripture, quote that gets me through tough times is: When life hands you lemons…squeeze them into people’s’ eyes. (This was on a t-shirt I bought during the year I was on cytoxan infusions – I wore it almost constantly.)
26. When someone is diagnosed I’d like to tell them: ‘Change’ is not a dirty word.
27. Something that has surprised me about living with an illness is: I think it’s brought out some of my finer qualities.
28. The nicest thing someone did for me when I wasn’t feeling well was: Running across the street to get me Gatorade.
29. I’m involved with Invisible Illness Week because: I think knowledge is a good thing.
30. The fact that you read this list makes me feel: warm fuzzies.

I definitely recommend checking out the articles on the website.

3 thoughts on “30 Things You Might Not Know

    • Thanks for asking! Sure, you can put a reference and link back to this post. It’d be great if you could post where you put it once it’s up, so people here could see it also!

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