Going to be in the NYC area? Check out this Lupus conference!

The Lupus Research Institute will be hosting their first “scientific conference for people touched by Lupus” in Times Square on October 8. It’s free to attend, but space is limited, so register early!

I plan to attend, so if you’re a reader of this blog who will also be in the area for the conference, let me know – I’d love to meet you all in person!

Also: I’m still looking for people to quote in my upcoming lupus booklet. If you’re interested, read my post on how to contribute – and get yourself a free copy of the finished piece!

3 thoughts on “Going to be in the NYC area? Check out this Lupus conference!

  1. I constantly read about how important it is to maintain a close relationship with your rheumatologist in order to properly manage diseases like rheumatoid arthritis and lupus. However, this is not the first time I have seen someone write about issues they have had with their rheumatologist. It seems like a potentially significant issue.

  2. I’m in Kansas so I won’t be able to attend the conference. I have so many symptoms, in fact every illness that I’m dealing with is common in patient’s with Lupus. The first hematologist I went to said she strongly suggested I have a rheumatology consultation because the symptoms I have are very compatible with non serologically negative Lupus. I’ve been to a number of rheumatologists and if I don’t test positive with the lab work they don’t even consider it. It’s very frustrating. I would like to put a name to the autoimmune disease that has invaded my once healthy body so that maybe, just maybe I could get the proper treatment and live even a better life than I am striving for. Good luck on your journey. I will continue to follow your blog and hopefully gain some extra knowledge on this disease. Have a great day. I hope you enjoy the conference.

    • Unfortunately, testing for lupus is still a murky field. Since so many of the symptoms match symptoms for other illnesses, even the doctors can get confused on how to treat a person. Hang in there – maybe there is a lupus specialist in your area that you might be able to see. Not all rheumatologists have specific experience with lupus – good luck on your journey as well!

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